REGISTRATION CLOSED - Chiari malformation/ Syringomyelia/ EDS Patient Information Seminar

Professors Stoodley and Bilston are hosting a Chiari malformation/ Syringomyelia/ EDS medical conference from 26 –28 June 2019 at Niagara Falls, USA, sponsored by The Column of Hope ( At the conference a separate session is being held for patients, carers and members of the public, where Professors Stoodley and Bilston will present summaries of the conference, including agreed areas for future research focus. There will be opportunities for those attending to ask questions and indicate problems that they believe should be subject to further research.

For those who are unable to attend the Niagara Falls conference a similar information session is being held in Sydney for Australian patients, their families and members of the public.


Professor Marcus Stoodley PhD, FRACS Professor Lynne E Bilston, PhD, FAHMS
MQ Health, Macquarie University Senior Principal Research Scientist
Australia NeuRA, Sydney, Australia


Saturday 31 August 2019
9.00am –1.00pm


Macquarie Graduate School of Management (MGSM)
Theatre 101
99 Talavera Road
Macquarie Park NSW 2113


$100 (including morning tea and lunch)
Complete the registration form (PDF 518.8KB) and email to Kate Morkel


Friday 16 August 2019
to Kate Morkel via 02 9812 3809


Patient Information Seminar (PDF 276.1KB)